Data Protection & Data Security Organisational and legal issues
The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.
Persons 
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Projects
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AIM+
Automatisiertes Infektionskrankheiten-Meldesystem
(Sorry - this page is only available in German.)
Duration: 2001 - 2003 aniplus+
Informationsplattform zur Optimierung der Tiergesundheit in der Metropolregion Bremen-Oldenburg (sorry - only available in german)
Duration: 2014 - 2015B
BQS-QIMS
Entwicklung eines Qualitätsindikatoren-Management-Systems (QIMS) für die BQS (Sorry - this page is only available in German.)
Duration: 2005 - 2006 BST ELLI
Bertelsmann-Stiftung, European Lifelong Learning Indicators
(Sorry - this page is only available in German.)
C
CARESS
CARESS Clinical and Epidemiological Cancer Data Warehouse System and Tooling
Duration: 1995 - -0001 CHARE-GD I SP1
Cross-border Health Data Compass as Basis for Comparative Studies (CHDC, SP1) | Teilprojekt von: Comparison of healthcare structures, processes and outcomes in the Northern German and Dutch cross-border region. (Phase I. CHARE-GD I)
Duration: 2021 - 2024 Publications
2025
Bildung einer Kohorte zur Untersuchung der medizinischen Versorgung nach einer Krebserkrankung im Kindes- oder Jugendalter (VersKiK-Kohorte) mittels Record-Linkage zwischen Deutschem Kinderkrebsregister und gesetzlichen Krankenkassen
Hiltrud Merzenich and Peter Ihle and Jutta Küpper-Nybelen and Christian Lüpkes and Claudia Bremensdorfer and Ekaterina Aleshchenko and Christian Apfelbacher and Pietro Trocchi and Dirk Horenkamp-Sonntag and Iris Meier and Patrik Dröge and Thomas Ruhnke and Ursula Marschall and Melanie Klein and Katja Baust and Gabriele Calaminus and Thorsten Langer and Enno Swart and Cecile Ronckers and Claudia Spix; Das Gesundheitswesen; 11 / 2025
Characterising childhood cancer survivors in Germany: A retrospective observational study on demographic, clinical, and healthcare utilisation patterns
Ekaterina Aleshchenko and Pietro Trocchi and Christian Apfelbacher and Katja Baust and Gabriele Calaminus and Patrik Droege and Dirk Horenkamp-Sonntag and Peter Ihle and Melanie Klein and Jutta Kuepper-Nybelen and Thorsten Langer and Christian Luepkes and Ursula Marschall and Hiltrud Merzenich and Thomas Ruhnke and Claudia Spix and Enno Swart and Cecile Ronckers; EJC Paediatric Oncology; 12 / 2025
Clustering Breast Cancer Patients Based on Their Treatment Courses Using German Cancer Registry Data
Blohm, Kolja and Korfkamp, David and Oesterling, Florian and Dählmann, Klaas and Schulze, Stefanie and Hein, Andreas; Methods of Information in Medicine; December / 2025
Development of a new cancer atlas in Lower Saxony using Bayesian smoothing methods
Blohm, Kolja and Beckhaus, Julia and Specht, Sebastian and Urbschat, Iris and Vohmann, Claudia and Lüpkes, Christian and Hübner, Joachim and Kieschke, Joachim and Hein, Andreas; 70. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e. V. (GMDS); 2025
Evaluation by accessibility index differences of the cross-border potential for general inpatient care in the Ems-Dollart Region, a Dutch-German cross-border area
Specht, Sebastian and Schnack, Helge and Hein, Andreas; Geospatial Health; Aug. / 2025
Hospital attraction measures in times of physician shortages: An analysis of job advertisements
Helge Schnack and Johanna Lubasch and Sarah Anna Katharina Uthoff and Anna Zinkevich and Milena von Kutzleben and Sebastian Specht and Markus Antonius Wirtz and Olaf von dem Knesebeck and Lena Ansmann; International Journal of Healthcare Management; 2025
Recruitment of a cohort to investigate medical follow-up care after childhood cancer: Record-Linkage between the German Childhood Cancer Registry and statutory health insurance companies (VersKiKCohort)
Hiltrud Merzenich and Peter Ihle and Jutta Küpper-Nybelen and Christian Lüpkes and Claudia Bremensdorfer and Ekaterina Aleshchenko and Christian Apfelbacher and Pietro Trocchi and Dirk Horenkamp-Sonntag and Iris Meier and Patrik Dröge and Thomas Ruhnke and Ursula Marschall and Melanie Klein and Katja Baust and Gabriele Calaminus and Thorsten Langer and Enno Swart and Cecile Ronckers and Claudia Spix; Gesundheitswesen; 2025
Small area disease mapping of cancer incidence in Lower Saxony using Bayesian spatial modeling
Kolja Blohm and Julia Beckhaus and Sebastian Specht and Iris Urbschat and Claudia Vohmann and Christian Lüpkes and Joachim Hübner and Joachim Kieschke and Andreas Hein; Abstracts of the 20th Annual Conference of the German Society for Epidemiology (DGEpi) 2025, 23 – 26 September 2025, Münster; 2025
Towards automatic inference of agents for cancer treatment from substance data in cancer registry data
Klaas Dählmann and Timo Wolters and Julia Beckhaus and Markus Sauerberg and Henrik Kusche and Joachim Hübner and Christian Lüpkes and Andreas Hein; 70. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e. V. (GMDS); 2025
2024
