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  1. Home
  2. Applications
  3. Health
  4. Data Management and Analysis
  5. Data Protection & Data Security

Data Protection & Data Security Organisational and legal issues

The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.

  • Data Management and Analysis
    • Health Services Research
    • Information Logistics
    • Analytical Applications
    • Data Protection & Data Security
  • Automation and Integration Technology
  • Assistive Technologies for Care and Health Professionals
  • Biomedical Devices and Systems

Persons

B

Kolja Blohm

E-Mail: kolja.blohm(at)offis.de, Phone: +49 441 9722-461, Room: Flx-G

D

Dr.-Ing. Klaas Dählmann

E-Mail: klaas.daehlmann(at)offis.de, Phone: +49 441 9722-290, Room: Flx-G

K

David Korfkamp

E-Mail: david.korfkamp(at)offis.de, Phone: +49 441 9722-346, Room: Flx-G

L

Dr.-Ing. Christian Lüpkes

E-Mail: christian.luepkes(at)offis.de, Phone: +49 441 9722-134, Room: E45

R

Martin Rohde

E-Mail: martin.rohde(at)offis.de, Phone: +49 441 9722-140, Room: U25

S

Sebastian Specht

E-Mail: sebastian.specht(at)offis.de, Phone: +49 441 9722-700, Room: U31

W

Timo Wolters

E-Mail: timo.wolters(at)offis.de, Phone: +49 441 9722-724, Room: Flx-G

Projects

C

CARESS

CARESS Clinical and Epidemiological Cancer Data Warehouse System and Tooling

Duration: 1995 - -0001

CARESS@RKI

Analytisches Informationssystem für Krebsregisterdaten

Duration: 2011 - -0001

CARLOS

Cancer Registry Lower-Saxony

Duration: 1999 - -0001

CITAH

Cross-Industry Transformation in Agriculture and Health

Duration: 2023 - 2025

L

LIA.NRW

Observatorium der Gesundheitsrisiken

Duration: 2011 - -0001

LZG.NRW

Automatisierte Gesundheitsberichterstattung und Überwachung meldepflichtiger Infektionskrankheiten

Duration: 2002 - -0001

M

MUSTANG

Multidimensional Statistical Data Analysis Engine

Duration: 2003 - -0001

Publications

2024

The Clinical Quality Language as a tool to support data analysis in German clinical cancer registries

Kolja Blohm and David Korfkamp and Joachim Hübner and Florian Oesterling and Stefanie Schulze and Andreas Hein; GMS Medizinische Informatik, Biometrie und Epidemiologie; 8 / 2024

URL DOI BIB

2023

Building a data warehouse for SQB reports for the epidemiologic cancer registry of Lower Saxony

David Korfkamp, Kolja Blohm, Christian Lüpkes, Andreas Hein; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 2023

DOI BIB
Design von Datenmodellen für die kleinräumige Analyse der Ems-Dollart-Grenzregion in der Versorgungsforschung

Sebastian Specht, Andreas Hein, Christian Lüpkes, Mark Schweda; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 2023

URL DOI BIB
SePaMiM – an online tool for analyzing course-of-disease data in German cancer registries using CQL

Kolja Blohm, David Korfkamp, Christian Lüpkes, Andreas Hein; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 2023

DOI BIB
Syntactic correction of social data for the evaluation of new treatment options

Klaas Dählmann and Timo Wolters and Christian Lüpkes and Andreas Hein; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 9 / 2023

URL DOI BIB
VersKiK: Study protocol of an observational registry-based study on the current state of follow-up care and adherence to follow-up guidelines after cancer in childhood or adolescence

E. Aleshchenko and C. Apfelbacher and K. Baust and G. Calaminus and P. Droege and J. Glogner and D. Horenkamp-Sonntag and P. Ihle and P. Kaatsch and M. Klein and T. Kloppe and J. Kuepper-Nybelen and T. Langer and C. Luepkes and U. Marschall and I. Meier and H. Merzenich and C. Spix and E. Swart and P. Trocchi; Cancer Epidemiology; 2023

DOI BIB

2022

A Cartography of the Effects of Disclosure Control on Small-scale Population Grids in the Context of Municipal Data Requirements in Northwest Germany.

Specht, Sebastian; 30th Annual Geographical Information Science Research UK (GISRUK), Liverpool, United Kingdom, 5th - 8th April 2022; 2022

URL DOI BIB
Designing a Cross-Border Health Atlas through Immersion in Health Services Research

Specht, Sebastian; Abstracts of the ICA; 2022

URL DOI BIB
Langzeitnachsorge und Spätfolgen bei Überlebenden nach Krebs im Kindes- und Jugendalter (VersKiK): Evaluation über ein Datenlinkage von Register- und GKV-Abrechnungsdaten.

Swart E, Alshchenko E, Trocci P, Apfelbacher C, Lüpkes C, Spix C, Meier I, Saam J, Küpper-Nybelen J, Voigt M, Dröge P, Schumacher C, Ihle P, Kloppe T, Langer T, Marschall U, Baust K, Calaminus G, Klein M; 2022

BIB
Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence (VersKiK): study protocol of a large scale multi-methods non-interventional study

Aleshchenko, E. and Swart, E. and Spix, C. and Voigt, M. and Trocchi, P. and Langer, T. and Calaminus, G. and Baust, K. and Glogner, J. and Ihle, P. and Küpper-Nybelen, J. and Lüpkes, C. and Kloppe, T. and Horenkamp-Sonntag, D. and Meier, I. and Marschall, U. and Dröge, P. and Klein, M. and Weiss, A. and Apfelbacher, C.; BMC Health Services Research; sep / 2022

DOI BIB
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