Data Protection & Data Security Organisational and legal issues
The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.
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CARESS
CARESS Clinical and Epidemiological Cancer Data Warehouse System and Tooling
Duration: 1995 - -0001 CHARE-GD I SP1
Cross-border Health Data Compass as Basis for Comparative Studies (CHDC, SP1) | Teilprojekt von: Comparison of healthcare structures, processes and outcomes in the Northern German and Dutch cross-border region. (Phase I. CHARE-GD I)
Duration: 2021 - 2024 L
LZG.NRW
Automatisierte Gesundheitsberichterstattung und Überwachung meldepflichtiger Infektionskrankheiten
Duration: 2002 - -0001M
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SePaMiM
Sequential Pattern Mining und Pattern Matching von Krankheits- und Behandlungsverläufen für klinische Krebsregister
Duration: 2021 - 2024 Publications
2022
A Cartography of the Effects of Disclosure Control on Small-scale Population Grids in the Context of Municipal Data Requirements in Northwest Germany.
Specht, Sebastian; 30th Annual Geographical Information Science Research UK (GISRUK), Liverpool, United Kingdom, 5th - 8th April 2022; 2022
Designing a Cross-Border Health Atlas through Immersion in Health Services Research
Specht, Sebastian; Abstracts of the ICA; 2022
Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence (VersKiK): study protocol of a large scale multi-methods non-interventional study
Aleshchenko, E. and Swart, E. and Spix, C. and Voigt, M. and Trocchi, P. and Langer, T. and Calaminus, G. and Baust, K. and Glogner, J. and Ihle, P. and Küpper-Nybelen, J. and Lüpkes, C. and Kloppe, T. and Horenkamp-Sonntag, D. and Meier, I. and Marschall, U. and Dröge, P. and Klein, M. and Weiss, A. and Apfelbacher, C.; BMC Health Services Research; sep / 2022
Untersuchung der Lage-Typisierung von Krankenhäusern durch Zonen potenzieller Erreichbarkeit
Specht, Sebastian and Schnack, Helge and Krauskopf, Jan Elmar and Hein, Andreas; AGIT Journal für Angewandte Geoinformatik; 2022
Wie reagieren Krankenhäuser auf den Ärzt:innenmangel? Eine Analyse von Personalbindungsmaßnahmen in Online-Stellenanzeigen
Schnack, Helge and Lubasch, Johanna and Uthoff, SAK and Zinkevich, Anna and Kutzleben, M and Specht, Sebastian and Pawel, A and Ramsauer, H and Ansmann, Lena and Knesebeck, O and Wirtz, Markus; Das Gesundheitswesen; 08 / 2022
2021
A Mobile Application for Documentation and Guiding of Stroke Patients – The LotsenApp
Christian Lüpkes, Timo Wolters, Andreas Hein; 7 / 2021
Der Weg zu Routinedaten aus 16 Notaufnahmen für die sektorenübergreifende Versorgungsforschung
Antje Fischer-Rosinský, Anna Slagman, Ryan King, Grit Zimmermann, Johannes Drepper, Dominik Brammen, Christian Lüpkes, Thomas Reinhold, Stephanie Roll, Thomas Keil, Martin Möckel, Felix Greiner und INDEED-Projekt; Medizinische Klinik - Intensivmedizin und Notfallmedizin; 10 / 2021
Großer Schaden im kleinen Kästchen?
Hein, Andreas; Lüpkes, Christian; Specht, Sebastian; RaumPlanung - Fachzeitschrift für räumliche Planung und Forschung; 1 / 2021
INDEED–Utilization and Cross-Sectoral Patterns of Care for Patients Admitted to Emergency Departments in Germany: Rationale and Study Design
Fischer-Rosinský, Antje and Slagman, Anna and King, Ryan and Reinhold, Thomas and Schenk, Liane and Greiner, Felix and von Stillfried, Dominik and Zimmermann, Grit and Lüpkes, Christian and Günster, Christian and Baier, Natalie and Henschke, Cornelia and Roll, Stephanie and Keil, Thomas and Möckel, Martin; Frontiers in Public Health; 2021
