• DE
  • Applications
    • Energy
      • Co-Simulation of Multi-Modal Energy Systems
      • Distributed Artificial Intelligence
      • Data Integration and Processing
      • Energy-efficient Smart Cities
      • Power Systems Intelligence
      • Resilient Monitoring and Control
      • Standardized Systems Engineering and Assessment
      • Smart Grid Testing
    • Society
      • Mixed Reality
      • Human-Centered AI
      • Personal Pervasive Computing
      • Social Computing
    • Health
      • Data Management and Analysis for Health Services Research
      • Automation and Integration Technology
      • Assistive Technologies for Care and Health Professionals
      • Biomedical Devices and Systems
    • Manufacturing
      • Smart Human Robot Collaboration
      • Manufacturing Operations Management
      • Distributed Computing and Communication
      • Sustainable Manufacturing Systems
    • Transportation: Info
    • Living Labs
      • Model Factory
      • DAVE
      • LIFE
      • IDEAAL
      • Pflegedienstzentrale
      • SESA
      • Fliegerhorst (Air Base) Smart City
  • Services
    • Contract research
    • Digitalization consulting
    • Technology consulting
    • Technology training
    • Contract development
  • Research
    • Applied Artificial Intelligence (AAI)
      • Adversarial Resilience Learning (E)
    • Architecture Frameworks (AF)
    • Cyber-Resilient Architectures and Security (CRAS)
    • Embedded System Design (ESD)
    • Human Machine Cooperation (HMC)
    • Multi-Scale Multi-Rate Simulation (MS²)
    • Sustainability
    • Safety Relevant Cyber Physical Systems (SRCPS)
  • OFFIS
    • News
      • Events
    • Blog
    • Career
      • Vacancies
    • Publishing and Tools
      • Roadmaps and Studies
      • Tools and Platforms
      • Datawork | OFFIS Journals
      • Annual Reports
    • Publications
    • Projects
    • Persons
    • About us
      • Mission statement, values and compliance
      • Organization
      • OFFIS-Memberships
      • Cooperation Partners
      • Society of Friends
      • Spin-offs
      • History
    • Contact
      • Directions
  • General
  • DE
  • Applications
    • Energy
      • Co-Simulation of Multi-Modal Energy Systems
      • Distributed Artificial Intelligence
        • Transparency und acceptance of self-x-systems
      • Data Integration and Processing
      • Energy-efficient Smart Cities
      • Power Systems Intelligence
      • Resilient Monitoring and Control
      • Standardized Systems Engineering and Assessment
      • Smart Grid Testing
    • Society
      • Mixed Reality
      • Human-Centered AI
      • Personal Pervasive Computing
      • Social Computing
    • Health
      • Data Management and Analysis for Health Services Research
        • Health Services Research
        • Information Logistics
        • Analytical Applications
        • Data Protection & Data Security
      • Automation and Integration Technology
      • Assistive Technologies for Care and Health Professionals
      • Biomedical Devices and Systems
    • Manufacturing
      • Smart Human Robot Collaboration
      • Manufacturing Operations Management
      • Distributed Computing and Communication
      • Sustainable Manufacturing Systems
    • Transportation: Info
    • Living Labs
      • Model Factory
      • DAVE
      • LIFE
      • IDEAAL
      • Pflegedienstzentrale
      • SESA
      • Fliegerhorst (Air Base) Smart City
  • Services
    • Contract research
    • Digitalization consulting
    • Technology consulting
    • Technology training
    • Contract development
  • Research
    • Applied Artificial Intelligence (AAI)
      • Adversarial Resilience Learning (E)
    • Architecture Frameworks (AF)
    • Cyber-Resilient Architectures and Security (CRAS)
    • Embedded System Design (ESD)
    • Human Machine Cooperation (HMC)
    • Multi-Scale Multi-Rate Simulation (MS²)
    • Sustainability
    • Safety Relevant Cyber Physical Systems (SRCPS)
  • OFFIS
    • News
      • Events
    • Blog
    • Career
      • Vacancies
        • About Applications
    • Publishing and Tools
      • Roadmaps and Studies
      • Tools and Platforms
      • Datawork | OFFIS Journals
      • Annual Reports
        • Archive
    • Publications
    • Projects
    • Persons
    • About us
      • Mission statement, values and compliance
        • Principles and mission statement
        • Diversity and Equality
        • Whistleblower System
      • Organization
        • General Assembly
        • Scientific Advisory Council
        • Administrative Council
      • OFFIS-Memberships
      • Cooperation Partners
      • Society of Friends
      • Spin-offs
      • History
    • Contact
      • Directions
  1. Home
  2. Applications
  3. Health
  4. Data Management and Analysis for Health Services Research
  5. Data Protection & Data Security

Data Protection & Data Security Organisational and legal issues

The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.

  • Data Management and Analysis for Health Services Research
    • Health Services Research
    • Information Logistics
    • Analytical Applications
    • Data Protection & Data Security
  • Automation and Integration Technology
  • Assistive Technologies for Care and Health Professionals
  • Biomedical Devices and Systems

Persons

B

Kolja Blohm

E-Mail: kolja.blohm(at)offis.de, Phone: +49 441 9722-461, Room: U22

D

Dr.-Ing. Klaas Dählmann

E-Mail: klaas.daehlmann(at)offis.de, Phone: +49 441 9722-290, Room: U24

K

Thorben Kloppe

E-Mail: thorben.kloppe(at)offis.de, Phone: +49 441 9722-711, Room: U24

David Korfkamp

E-Mail: david.korfkamp(at)offis.de, Phone: +49 441 9722-346, Room: U22

L

Dr.-Ing. Christian Lüpkes

E-Mail: christian.luepkes(at)offis.de, Phone: +49 441 9722-134, Room: E45

R

Martin Rohde

E-Mail: martin.rohde(at)offis.de, Phone: +49 441 9722-140, Room: U25

S

Sebastian Specht

E-Mail: sebastian.specht(at)offis.de, Phone: +49 441 9722-700, Room: U31

W

Timo Wolters

E-Mail: timo.wolters(at)offis.de, Phone: +49 441 9722-724, Room: U23

Projects

C

CARESS

CARESS Clinical and Epidemiological Cancer Data Warehouse System and Tooling

Duration: 1995 - -0001

CARESS@RKI

Analytisches Informationssystem für Krebsregisterdaten

Duration: 2011 - -0001

CARLOS

Cancer Registry Lower-Saxony

Duration: 1999 - -0001

L

LIA.NRW

Observatorium der Gesundheitsrisiken

Duration: 2011 - -0001

LZG.NRW

Automatisierte Gesundheitsberichterstattung und Überwachung meldepflichtiger Infektionskrankheiten

Duration: 2002 - -0001

M

MUSTANG

Multidimensional Statistical Data Analysis Engine

Duration: 2003 - -0001

S

SePaMiM

Sequential Pattern Mining und Pattern Matching von Krankheits- und Behandlungsverläufen für klinische Krebsregister

Duration: 2021 - 2024

Publications

2022

Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence (VersKiK): study protocol of a large scale multi-methods non-interventional study

Aleshchenko, E. and Swart, E. and Spix, C. and Voigt, M. and Trocchi, P. and Langer, T. and Calaminus, G. and Baust, K. and Glogner, J. and Ihle, P. and Küpper-Nybelen, J. and Lüpkes, C. and Kloppe, T. and Horenkamp-Sonntag, D. and Meier, I. and Marschall, U. and Dröge, P. and Klein, M. and Weiss, A. and Apfelbacher, C.; BMC Health Services Research; sep / 2022

DOI BIB

2021

A Mobile Application for Documentation and Guiding of Stroke Patients – The LotsenApp

Christian Lüpkes, Timo Wolters, Andreas Hein; 7 / 2021

URL BIB
Der Weg zu Routinedaten aus 16 Notaufnahmen für die sektorenübergreifende Versorgungsforschung

Antje Fischer-Rosinský, Anna Slagman, Ryan King, Grit Zimmermann, Johannes Drepper, Dominik Brammen, Christian Lüpkes, Thomas Reinhold, Stephanie Roll, Thomas Keil, Martin Möckel, Felix Greiner und INDEED-Projekt; Medizinische Klinik - Intensivmedizin und Notfallmedizin; 10 / 2021

DOI BIB
Großer Schaden im kleinen Kästchen?

Hein, Andreas; Lüpkes, Christian; Specht, Sebastian; RaumPlanung - Fachzeitschrift für räumliche Planung und Forschung; 1 / 2021

URL BIB
INDEED–Utilization and Cross-Sectoral Patterns of Care for Patients Admitted to Emergency Departments in Germany: Rationale and Study Design

Fischer-Rosinský, Antje and Slagman, Anna and King, Ryan and Reinhold, Thomas and Schenk, Liane and Greiner, Felix and von Stillfried, Dominik and Zimmermann, Grit and Lüpkes, Christian and Günster, Christian and Baier, Natalie and Henschke, Cornelia and Roll, Stephanie and Keil, Thomas and Möckel, Martin; Frontiers in Public Health; 2021

DOI BIB

2020

Data validation for healthcare cost analysis in STROKE OWL

Timo Wolters and Timo Michelsen and Christian Lüpkes and Andreas Hein; GMS Medical Informatics Biometry Epidemiology (MIBE); August / 2020

URL DOI BIB
Demografie-Toolbox - Neuartige digitale Werkzeuge für die Gewinnung und Auswertung kleinräumiger demografischer Daten

Kramer, Bernd / Wette, Laura / Specht, Sebastian / Handke, Thomas; 2020

URL BIB
Detail or Disclosure – Towards a Visualisation of Confidentiality Related Spatial Damage to Demographic Grids

Specht, S. and Kramer, B.; Abstracts of the ICA; 2020

URL DOI BIB
Generation of Fine Grained Demographic Information for Epidemiological Analysis

Timo Wolters and Oke Wübbenhorst and Christian Lüpkes and Andreas Hein; Digital Personalized Health and Medicine - Proceedings of MIE 2020, Medical Informatics Europe, Geneva, Switzerland, April 28 - May 1, 2020 [conference cancelled because of Covid-19]; 2020

URL DOI BIB
Practical Implementation of Receiver-Oriented Encryption in STROKE OWL

Timo Michelsen and Christian Lins and Andreas Hein and Christian Lüpkes; Digital Personalized Health and Medicine - Proceedings of MIE 2020, Medical Informatics Europe, Geneva, Switzerland, April 28 - May 1, 2020; 2020

DOI BIB
EN: Alle Publikationen aus dem Bereich Data Protection & Data Security
PrivacyData TransparencyContactLegals